Ask your doctor if you have questions. We had this aging population of patients with spina bifida that did not have good access to adult health care says betsy hopson director of the children s and uab clinics.
Normal aging process including loss of muscle strength and flexibility less physical stamina and a decrease in sensory abilities tend to decline faster or more sever for adults with sb.
Spina bifida clinic for adults. Although there are many physicians who treat spina bifida in children there are few such specialists for adults. As adults with spina bifida age they encounter the typical effects of aging at a different and more rapid rate. For many years the medical community has focused on providing care for children and offers many children s clinics throughout the country.
The adult spina bifida clinic housed in uab s spain rehabilitation center brings the three key specialties together in one place and can tap into the rest of uab s medical expertise as needed. Unfortunately there are not enough providers who are trained to provide care for adults living with spina bifida. You can find more information about adolescents and adults with spina bifida at.
Spina bifida in adults. 9500 euclid avenue q10. The clinic is staffed by health care provider representatives from these institutes for the treatment of urological issues physical medicine and rehabilitation and internal medicine for the prevention and treatment of disease.
Cleveland clinic s adult spina bifida clinic uses a similar model of integrated care for adult patients with a team experts from our the neurological institute glickman urological kidney institute and medicine institute. Information not available at this time nationwide children s hospital. Scd can lead to lifelong disabilities and reduce average life expectancy.
About half of people living with spina bifida in the united states are adults. Cdc considers scd a major public health concern and is committed to conducting surveillance raising awareness and promoting health education. Adults who have spina bifida face different problems than do children including.
Through our adult spina bifida clinic we offer a variety of services and resources designed to help individuals with spina bifida as they transition from pediatric care to adult care. 11100 euclid avenue rbc 2311. Mri and ct scans.
Cleveland clinic adult spina bifida clinic. Our clinic geared specifically towards adults combines a variety of specialties in order to provide the most comprehensive up to date care for patients with spina bifida. Assessment for a sleep disorder in those with myelomeningocele helps detect sleep disordered breathing such as sleep apnea which warrants treatment to improve health and quality of life.
The northcott spina bifida adult resource team can help with the transition to adult services. Sickle cell disease scd is a common inherited blood disorder in the united states affecting an estimated 70 000 to 100 000 americans. The upmc adult spina bifida clinic offers on site.
Uh rainbow babies children s hospital. There is another fact sheet about relationships sexuality and fertility you may like to read. Both children and adults with spina bifida particularly myelomeningocele may have sleep apnea or other sleep disorders.