N new parents information brochure click here. The spina bifida association has a wide array of resources including advice for expectant parents of children with sb for those undergoing the transition from teenage years to adulthood and the health ramifications this brings and mental health resources for coping with issues like anxiety and depression.
Research related to adults with spina bifida was nearly nonexistent.
Resources for adults with spina bifida. Guía para padres de bebés con espina bífida. Exercise is important for people with spina bifida because it increases their ability to live an independent high quality life. P parenting pregnancy information for people with spina bifida click here.
Find a webinar that will address your questions or interests guidelines for the care of people with spina bifida ask that your physicians use these guidelines as a roadmap to providing care. The spina bifida adult resource team provides specialised information and support for adults with spina bifida who are transitioning from paediatric to adult services. The spina bifida resource network sbrn provides services and programs to children adults and families living with spina bifida and other disabilities.
Physical activity is more. Our services and programs are geared towards increasing knowledge self care capabilities and independence. We provide individualized services in the home and community throughout new jersey.
Resource let s be frank. Sb you is sba s online education program for about and by adults with spina bifida. The spina bifida association has developed a free interactive mobile app to help people with spina bifida and their families search the new guidelines and track their health to share with their physician.
In general exercise strengthens muscles and bones helps maintain a healthy mood and weight and reduces the risk of heart diseases diabetes hypertension and certain cancers. This meeting highlighted that much of the research in spina bifida was based on case series. Mental health and spina bifida living well with sbh booklet edition click here men s wellness program online support group click here money matters living well with sbh booklet edition click here.
The spina bifida resource network sbrn provides services and programs to children adults and families living with spina bifida and other disabilities. Very few randomized control trials or representative cohort studies had been performed on any topic on people with spina bifida. Spina bifida fact sheets.
The state wide sbart is funded by the department of health and hosted by northcott meaning that it is not ndis funded and open to anyone with spina bifida. Relationships and intimacy for men with spina bifida la experiencia en la ucin. The primary goal of the evidence based review was.