Spina bifida is the most common permanently disabling birth defect that is associated with life in the united states. Since 1973 sba has been the only national voluntary health agency solely dedicated to enhancing the lives of those with spina bifida and those whose lives are touched by this challenging birth defect.
It s a type of neural tube defect ntd that occurs when a babies neural tube fails to develop or close properly the literal meaning for spina bifida is split spine.
National spina bifida association. Contact the national resource center. In 1968 a small group of parents whose children had spina bifida and or hydrocephalus established a voluntary organisation which would highlight awareness of these two conditions and support families individuals and carers who were affected. The spina bifida association of america sbaa promotes the prevention of spina bifida and aims to enhance the lives of all affected.
Spina bifida hydrocephalus canada is a federation of 13 organizations working collectively on behalf of people with spina bifida and or hydrocephalus. About our research. Identify the nearest spina bifida clinic or center of care.
About spina bifida. Spina bifida covid 19. National resource center.
Sba s national resource center is the only service in the united states exclusively dedicated to addressing your questions about living with spina bifida. In 2006 a survey of spina bifida clinics across the united states conducted by the spina bifida association sba identified differences in staffing delivery of services and patient care. The association promotes the continuing education of healthcare professionals involved in the treatment of spina bifida.
Our national resource center provides referrals and resources responding to inquires in spanish and english. To address these gaps sba s professional advisory council advocated for the establishment of the national spina bifida patient registry nsbpr at cdc. The national resource center can help you.
It maintains a toll free information and referral service provides direct program services for its members and chapters conducts public awareness campaigns and holds an annual national conference addressing spina bifida. Find local support agencies and. Spina bifida association home page.
The spina bifida association sba serves adults and children who live with the challenges of spina bifida. The association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. The spina bifida association mission is to promote the prevention of spina bifida and enhance lives through research advocacy education and support.
About spina bifida hydrocephalus ireland. Our volunteer national board of directors is comprised of representatives from member associations across the country. National spina bifida patient registry.
What is spina bifida. Find the closest sba chapter or support community.