Living well with spina bifida includes controlling weight exercise regular health and equipment reviews and attention to any warning symptoms. Life with spina bifida.
This video is all about my experience growing up with spina bifida.
Living with spina bifida. Today s video is on a more personal subject but i hope you like it. For people with spina bifida it is especially important to begin planning for transitions in childhood so they are able to lead independent lives as adults. At choc we work with patients and their families to prevent or minimize each patient s deformities and maximize the child s capabilities at home and in the community.
This birth defect affects an individual s spinal column. Meeting the complex needs of a person affected by spina bifida involves the whole family and can be challenging at times. Did you know that if an individual is diagnosed with spina bifida it means that person has a cleft spine.
With excellent treatment and care children with spina bifida can become active productive people with normal or near normal life spans. People with spina bifida higher on the spine near the head might have paralyzed legs and use wheelchairs. Life with spina bifida.
Every person affected by spina bifida experiences their own journey. This section of the website provides information about living with spina bifida at different ages. Finding resources knowing what to expect and planning for the future can help.
The challenges of living with spina bifida. It progresses from a split like opening in the back part of the backbones or the spinal vertebrae. This begins to take place just 21 to.
Learning to take care of their own health needs. By monitoring your health it is possible to prevent complications minimise hospital admissions maintain your level of independence and maximise your participation in your community. Some people with spina bifida may have limited feeling or paralysis in some parts of their bodies making it difficult to walk.
Spina bifida is an incurable life long condition. Spina bifida is a birth defect of the spine and people with this condition may have physical and intellectual challenges that affect major life activities such as education and employment. Young adults affected by spina bifida can face challenges such as.
Whether you are caring for a child with spina bifida or you are an adult with spina bifida it is important that you learn as much as possible about. People affected by spina bifida get around in different ways. These include walking without any aids or assistance.
Walking with braces crutches or walkers. Spina bifida is often referred to as the snowflake condition as no two people are affected the same way.