Women with spina bifida will have structural changes to the uterus while those who experience spina bifida occulta generally do not. To describe health issues and living conditions in a cohort of adults living with spina bifida.
Spina bifida remains one of the leading cause of infantile paralysis in the world.
Living with spina bifida occulta. Spina bifida occulta is the mildest type of spina bifida. This section of the website provides information about living with spina bifida at different ages. Spina bifida is a complex disorder that has physical psychological and social implications.
However the occulta abnormality can cause lower body inflexibility and difficulties with potential tethered cord that will impact the ability of a woman s body to maintain a pregnancy. While it primarily affects the brain and spinal cord it also impacts rela. According to the spina bifida association 10 to 20 percent of.
One hundred and ninety six persons 104 women and 92 men. The types of spina bifida include the following. When symptoms occur they generally include.
Spina bifida occulta results in a small separation or gap in one or more of the bones of the spine vertebrae. The national spina bifida association sba documents more than 70 000 individuals in the united states living with spina bifida. It s the mildest and most common type.
A cross sectional study was conducted by a multidisciplinary team. Meeting the complex needs of a person affected by spina bifida involves the whole family and can be challenging at times. It may go unnoticed until later in life and it does not cause any disabilities.
Spina bifida occulta may leave those with the condition susceptible to symptoms caused by their spinal column being left exposed. The spinal cord and the nerves usually are normal. It is sometimes called hidden spina bifida.
Adults with spina bifida n 219 were invited to participate. About 1 in 1 000 people with sbo will experience symptoms however. Finding resources knowing what to expect and planning for the future can help.
Spina bifida occulta occulta means hidden. Pain in the back of the legs. Loss of bladder or bowel.
Many people who have spina bifida occulta don t even know it unless the condition is discovered during an imaging test done for unrelated reasons. Spina bifida is the second most common disability in children. With it there is a small gap in the spine but no opening or sac on the back.
This is a small fraction of all those affected worldwide. Approximately 167 000 people with spina bifida live in the us. Many times spina bifida occulta is not discovered until late childhood or adulthood.
18 73 years median age 33. It is the most common neural tube defect in the us affecting around 2 000 babies every year.