There are six sb clinics in the state. 5461 meridian mark road ne.
They are located at winston salem durham asheville charlotte chapel hill and greenville.
Duke spina bifida clinic. 11 vanderbilt park drive. Children s medical office building at scottish rite hospital spina bifida clinic. Myelodysplasia spina bifida cystica children with any myelodysplasia diagnosis such as myelomeningocele lipomeningocele tethered cord disastematomyelia and even children with spinal cord injuries can be seen in duke s multidisciplinary myelodysplasia clinic which offers coordinated care from the medical surgical and allied health.
Sickle cell disease scd is a common inherited blood disorder in the united states affecting an estimated 70 000 to 100 000 americans. Spina bifida clinic tuberous sclerosis complex program and clinic a comprehensive description of all of our pediatric neurology clinical services locations and appointment information is available on duke children s. Spina bifida is a complex condition that requires lifelong coordinated care from multiple medical and surgical specialties.
Spina bifida clinics in north carolina. He founded orthopaedic specialists of north carolina in 2001 and practices at franklin regional medical center and duke raleigh hospital. Spina bifida occulta.
2 department of urology university of oklahoma college of medicine oklahoma city ok. Scd can lead to lifelong disabilities and reduce average life expectancy. Defect involves primarily bone but skin may be attached to dura spinal cord or nerve roots by fibrous bands.
At duke we understand that problems and solutions related to spina bifida vary from person to person so we customize care based on your or your child s needs and lifestyle. The spina bifida association sba announced its inaugural group of 31 clinics from across the country including duke children s that met 10 standards identified as best practices to care for people with spina bifida these clinics have dedicated health care professionals who partner with people living with spina bifida and their families to provide expert care and help identify research. Guidelines recommend kidney function surveillance in these patients but practice patterns are unknown.
Variations in kidney function surveillance were assessed in patients with spina bifida based on the hypothesis that the treating clinic and spina bifida type would be associated with kidney. 100 east idaho street suite 200. Chronic kidney disease affects 25 to 50 of patients with spina bifida.
Chapel hill nc 27599. Cdc considers scd a major public health concern and is committed to conducting surveillance raising awareness and promoting health education. Spina bifida has traditionally been regarded as a pediatric health issue with little regard to adult consequences of the disorder.
Luke s children s spina bifida clinic. 3 department of urology cleveland clinic cleveland oh. Sb clinic at unc.
Unc school of medicine.