The hydrocephalus support association hsa is a not for profit organisation whose core mission is to support people with hydrocephalus and their families to overcome disadvantage strengthen their abilities and successfully live independently. It is important to know that some people between 5 and 15 percent with spina bifida may have very few signs or even no visible change in the size of the ventricles when the shunt is not working correctly.
Your gift will have a profound impact on people and their families with spina bifida and hydrocephalus.
Association for spina bifida and hydrocephalus. What we do asbah formed in 1966 works with people with spina bifida and or hydrocephalus their families and other carers in england wales and northern ireland. The group provides advisory advocacy and other services to people with spina bifida and or hydrocephalus. The association is a registered charity.
Spina bifida hydrocephalus canada is a federation of 13 organizations working collectively on behalf of people with spina bifida and or hydrocephalus. Asbah works in partnership with people with spina bifida and or hydrocephalus and their carers and health care professionals to promote positive attitudes towards disabled people. The spinal cord has not formed properly and may also be damaged.
A fault in the development of the spinal cord and surrounding bones vertebrae leaves a gap or split in the spine. Membership of if is open to all nationally registered sbh associations that share if s vision and mission and actively involve people with sbh in their work. The sussex association for spina bifida hydrocephalus over 50 years of support in sussex.
Their determination and dedication resulted in the establishment of the irish association for spina bifida hydrocephalus iasbah. Sasbah has over 50 years experience in supporting and developing the health wellbeing and life opportunities of people with spina bifida hydrocephalus and other related conditions. The jersey association for spina bifida and hydrocephalus was formed in 1968 and incorporated in the royal court in 1973.
On the other hand some people with shunted hydrocephalus can develop the slit or stiff ventricle syndrome. Our volunteer national board of directors is comprised of representatives from member associations across the country. If s fast growing membership now includes 68 spina bifida and hydrocephalus sbh associations in africa australia the americas asia and europe.
The association is established for charitable purposes in the care welfare treatment and education of persons suffering from spina bifida or hydrocephalus as well as encouraging research which would be to the benefit of such persons. Spina bifida literally means split spine. Asbah employs advisers who work alongside our service users to help them overcome their disabilities and become less dependent on others.
The association was formed by parents who were committed to taking action to improve the prospects of people who were living with spina bifida and or hydrocephalus.